Shannon Von Felden

Shannon von Felden is the Senior Director of Advocacy at the EveryLife Foundation for Rare Diseases. Shannon has led Rare Disease Legislative Advocates (RDLA) for over five years and works with rare disease advocates across the country to engage at the local, state, and federal level. She began her career on Capitol Hill working on health care and veterans’ affairs issues. Shannon has worked with national nonprofit organizations to further their policy and advocacy goals including JDRF and the Bone Health and Osteoporosis Foundation. She received her Master of Public Policy from American University.