Film Festival: DISORDER Films
1:00 PM - 5:00 PM (EDT), Monday, June 5, 2023 ・ Session Room 105
1:00 PM – 2:00 PM: Panel Discussion
2:00 PM – 5:00 PM: Film Screenings*
DISORDER Films:
• Tess Is Not Alone: A USP7 Story (Hao-Fountain USP7)
• Celebrating Caren (SYNGAP1)
• Menkes Disease: Finding Help & Hope (Menkes Disease)
• Protein Kills Us (PKU)
• Bad Days, Good Days, Rare Days (Okur Chung Syndrome, Epidermolysis Bullosa, SYNGAP1, Menkes Disease, Bosch-Boonstra-Schaaf Optic Atrophy Syndrome, Ichthyosis, ADCY5 related, Dyskinesia, STXBP1)
• Plus, Creating John’s Song, produced by Horizon Therapeutics
*Films will be played on a continuous loop
2:00 PM – 5:00 PM: Film Screenings*
DISORDER Films:
• Tess Is Not Alone: A USP7 Story (Hao-Fountain USP7)
• Celebrating Caren (SYNGAP1)
• Menkes Disease: Finding Help & Hope (Menkes Disease)
• Protein Kills Us (PKU)
• Bad Days, Good Days, Rare Days (Okur Chung Syndrome, Epidermolysis Bullosa, SYNGAP1, Menkes Disease, Bosch-Boonstra-Schaaf Optic Atrophy Syndrome, Ichthyosis, ADCY5 related, Dyskinesia, STXBP1)
• Plus, Creating John’s Song, produced by Horizon Therapeutics
*Films will be played on a continuous loop